First of all, as always - a few house keeping items:
- If you're NEW here (and there've been a lot of new additions to the party!) I'm working on creating some tutorials to help you out. You can click on the links above or: See "Getting Started" and "Tutorials"
- To see all the past weekly challenges - click the tab above, or follow this link
- Please grab the button for the Weekly Challenge (on the right sidebar) to display on your blogs! share the fun!
- The limit of submissions to the slideshow is TWO, but please feel free to post as many as you like to your blogs. I will take the first two presented to each challenge.
- and i want to say a very extra special big heart felt thank you to everyone who donated funds. I continue to be amazed by the generosity of spirit of this wonderful community. HUGS!
Welcome back to the Weekly Challenge.
Currently, 3 out of 4 people in this house are sick. Chewie has been working on a fever and sinus stuff, and Artoo is now getting it, and oh yeah, me too. I feel like i've been plowed over with a freight train, and then the remains of me were scooped up and then given this cold and or flu. whatever it is. I'm really hoping that it's not the flu - because that's been putting people in the hospital here. Ain't nobody got time for that!
So, i'm going to skip all the preamble and jump right to the challenge because i'm sick and i want to go to sleep... but i LOVE YOU ALL SO MUCH!!! i would hate to disappoint any of you. ;) i'm sweet like that.
Weekly Challenge #103: "String Theory v.XXII - Moebius Syndrome Awareness"
Moebius Syndrome Awareness day is Thursday, January 24th.
For those of you who've been around since the beginning you know that my son, Artoo, has Moebius Syndrome.
For all my new friends - Moebius Syndrome is a congenital nerve disorder affecting cranial VI and VII nerves controlling the lateral movement of his face. Moebius is a spectrum disorder - so some cases are more severe than others. We've been extremely lucky that Artoo's symptoms haven't been too difficult to adjust to.
Without going into too much detail about his condition; we deal with delayed developmental milestones, eating/feeding issues, club feet, low muscle tone - just to name a few things, and of course - being unable to deal with viruses and bacterias, he gets very sick. very fast.
Not a lot of people know about Moebius Syndrome, which is not surprising given the odds of having a child with Moebius is 1-2:1,000,000
yes. one million.
When Artoo was first born and we'd take him to the hospital for emergencies, we'd tell the doctors that he has Moebius Syndrome and they would say: "What's that?" We've had to become the experts on the syndrome, and the advocates for our child, finding our way through the haze of the medical system.
And now on to the actual challenge. To raise awareness for this disorder, use the Moebius Syndrome Foundation's logo as your string, or create a moebius strip out of paper and tangle that... or some other awesome creative thing that i haven't thought of.
Here's two versions of the logo for you to work with. You can print them or trace them or draw your own.
For those of you who remember this challenge from last year, please don't submit your tile from last year. I'm going to send the link to the slideshow to the folks on my Moebius Syndrome support group on facebook, i'd love for them to see all your amazing artwork so that each and every one of them will know that they are not alone and that we are aware!!
As for me, i'm sick - but i will post mine by Thursday, January 24th, Moebius Syndrome Awareness Day.
i also want to stress here that Moebius Syndrome is NOT A DISEASE, it's a disorder affecting his nerves. It does not affect intelligence, in fact - Artoo is really super smart. i just had to get that off my chest. thanks!
have a great week!
If you have a blog, add the site-specific URL where your tile is posted to the linkey machine below! Don't forget to link back here so that others can join in the fun! (if you don't know how to find this, you can see my half assed tutorial here)
Also, please feel free to come back often and visit the links of those people on the linkey machine - don't forget to leave a comment or feedback, everyone loves feedback. ;)
If you don't have a blog but still want to participate, you can email your tile to me and i will post it here. (See the contact tab above for my email address). The deadline for each weekly challenge is Saturday night so that i can round everyone up by Sunday. What this means is that i will stop adding tiles to the slideshow on Sunday. You're still more than welcome to do the challenges and add your name to the linkey machine.
I will be more diligent with the linkey machine - by editing out the ones that don't work, the doubles, the links that lead to nowhere, the links that go just to blog home pages (this is why we need those site specific urls), and the spam. And there is some spam. PLEASE do not put your *home* page in the linkey machine... please? for me??